Girl Battles One of History's Worst Cases of Epilepsy
By AAN Staff
january 3, 2003 09:48 am
Jamie Libenstein's slow descent into hell began midway through her kindergarten year. That's when the little girl suffered her first
epileptic seizure--which, sadly, was only a taste of the horror to
come. Jamie's since been diagnosed as having one of the worst cases
of epilepsy ever seen by medical science. She's endured "starvation
diets," narcotic comas that have put her near death, and seemingly
medieval surgical procedures. She's watched as her case has led to
bitter arguments between some of the world's most gifted
surgeons--and hastened the breakup of her parents' marriage. Still,
she and her family have persevered, pushing past personal hardship
to keep fighting for a cure. In the medical mystery "Jamie's
World," former New Times Los Angeles staff writer Susan
Goldsmith tells the story of a truly remarkable eleven-year-old girl.